I think it might be a good idea to share—in its original format—my sweet wife’s most recent note about Bruce.
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Dear friends and family,
It’s been nearly two months since I’ve given an update, but now Bruce is showing marked improvement. Today completes seven months in the hospital. At seven weeks, that seemed a long time, but I had no idea what we were facing.
In recent months, it’s been difficult to report because he’s teetered back and forth while battling infection. He would have good days followed by days of fever and nausea. It was hard think he was getting better when I’d see him get pints of hemoglobin, but he fought on.
About the time the infectious disease specialist was ready to throw up his hands in defeat, the surgeons declared that they didn’t want to set him back with another surgery, that they would stay the course. That was almost a month ago.
Since then, they decided to test out the pancreas by giving him juice. The next day, he was told to pick out what he wanted off the menu. This seemed outlandish to me, since he’d had nothing but ice chips for more than 6 months. His stomach and taste buds must have been in shock. He doesn’t actually digest what he consumes due to bypass tubing, but I would have thought a return to food would be more gradual. He is going easy on it since his basic nutrition is still provided by tube feeding. He still has frequent nausea, but the pancreas and blood sugar are not over-reacting to this new challenge.
He’s been off antibiotics for several days, and no fever so far. The pain is getting better, so he’s being weaned off the “patch,” and he’s asking for Dilaudid less often. His voice is now strong, and he is using a walker twice a day. His ability to concentrate is suddenly much improved.
I expect that he will go home soon, although having to travel for dialysis will be a whole new challenge. With the hospital bill alone over $8 million by last month, everyone’s eager for him to go home. Very few people, whatever their station in life, could handle the co-pay on such an amount.
Recently we were told that the survival rate for someone with pancreatitis this severe is about 1%—an eye-opening statistic if accurate. I tell you this so that you’ll know how vital your kindnesses to us have been. We will be eternally grateful for your understanding and support and for your thoughts and prayers on Bruce’s behalf.
With a grateful heart,
Dana